Tuesday, December 11, 2018

Fifth Cast and UW Apointment

Yesterday was Icem’s Fifth casting appt. His feet are looking so great! I can’t believe how fast this first phase has gone. His poor skin is so dry under the casts. I can’t wait to put lotion on him. They don’t want us to put it on between casts because it can cause them to slip and need to be redone. He liked his bath this week as well.
Look at those straight feet!!


Someone was smiling today! 

Icem weighed 11 lbs 2 oz at the appt, which means he put on 17 oz in one week! You can really see it in his face. The doctor was happy once again, Icem wasn’t so much. He was pretty fussy during casting.  We were given a Tylenol prescription for him to take before and after the tenotomy on Friday. 

After our appointment Icem got to meet his Great-Grandma Dona.  


Later we watched the Seahawks with the Reece family. Go Hawks!


Today Garret, Icem, and I met with Paul and Britta, the pastors doing Icem's dedication this weekend. It was great to catch up with them. They officiated our wedding and now get to come full circle with our family. 

Later, Pops and I drove Icem down to UW Medical to see Dr. Sybert. She has dealt with Ichthyosis for a very long time. We have been using the same lotion that my brothers use on their skin with great success. He has baby skin again on his torso and arms. His head is almost done shedding too. She said his skin looks great with what we are doing. It isn't necessary to do the genetic test, we can be pretty sure he has it and keep treating it with the Amlactin lotion. She did say that if we needed further assistance they could get us into the Seattle Children's Dermatology clinic. Overall, I felt good about what we were doing for Icem, it will just be a part of our routine. 


 After our appointment we ate at Sakuras to celebrate Nana, Icem's other Great-grandma. Icem smiled quite a few times, which was so fun! 

Dad needed a bottle...



We are raising a genius! He held his own bottle ;) Look Mom, no hands!



Another update Friday, wish us luck with the tenotomy!




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